28 Things You Shouldn’t (and Should) Say to Someone With Fibromyalgia Disease

Fibromyalgia Disease

Fibromyalgia Disease is a chronic pain disorder that affects an estimated 10 million people in the United States. Symptoms can include joint pain, fatigue, sensitivity to touch, sleep disorders and problems with cognitive functioning, or “Fibromyalgia Disease fog.” But because symptoms vary for just about everyone, it’s difficult for outsiders to understand what exactly fibromyalgia is — and what to say to someone who has it.The Mighty teamed up with the National Fibromyalgia Disease Association and asked their community what they wish others would stop saying to them — and what they wish people would say instead. Here’s what they had to share:

1. “Is that a real illness? I’ve heard it isn’t real.” —Kim Pallireto

2. “I’d like to stop hearing things like, ‘You look good,’ and ‘If you just lost weight, were more active, got out more, etc… you’d feel better.’ Instead, I’d like people to say, ‘We’d love to have you join us if you feel up to it,’ or ‘I know it’s hard for you got get out… how about if we bring pizza (or whatever) and watch a movie together?’” —Donna B. Russell